Holistic Care Hirschsprungs Disease: Patient centered care in Hirschsprung Disease (HSCR) and Total Colonic Aganglionosis (TCA)- Optimizing the pathway of care- including pre and postoperative care
A Collaboration between clinicians and patient associations from Poland, UK, Italy, Netherlands, Austria and Germany will take place in Warnemünde organised by the Rostock Colorectal Center. Hirschsprung Disease (HSCR) is a rare disease affecting the capability to transport and pass stool resulting in obstruction of the bowel.
Topics include:
1 Patient and Family needs before and after surgery
2 Patient support groups for Hirschsprung’s in Europe- ideas for cross collaboration
3 Optimal bowel management
4 Surgical Strategies in Hirschsprungs and Total Colonic Aganglionosis
5 Quality of Life Aspects, Longitudinal follow up, Continence Score
6 Transition
Early bird fees before 15.6.23
10% discount for EUPSA members on the registration fee
More information please contact us: OASIS.HolisticHirschsprungs@gmail.com